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Inspire recently participated in the Agency for Healthcare Research and Quality (www.ahrq.gov) conference entitled 'Building Bridges: Consumer Needs and the Design of Health Information Technology' in Rockville, MD. Here's a big thank you to the organizers and attendees who made it such an important meeting. We learned a lot, and hopefully contributed to the findings as well.
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Recent provisions in the stimulus bill made research funding available to the National Institutes of Health, the Agency for Healthcare Quality and Research and the Centers for Medicare and Medicaid Services to focus on producing the best unbiased science possible.
Comparative effectiveness research has the potential to tell us which drugs and treatments are safe, and which ones work. This is not information that the private sector will generate on its own, or that the "industry" wants to share. Companies want to control the data, how it is reviewed, evaluated, and whether the public and government find out about it and use it. Just about the way they are controlling data now.
Comparative-effectiveness research is not something for patients to be afraid of. It can help doctors and patients, through research, studies and comparisons, undertand which drugs, therapies and treatments work and which don't. Nothing in the legislation will have the government monitoring treatments in order to guide your doctor's decisions. Doctors will still have the ultimate decision, along with the patient.
"Nothing in the legislation will have the government monitoring treatments in order to guide your doctor's decisions. Doctors will still have the ultimate decision, along with the patient."
let me congratulate you on being one of the very few people on the planet that have actually read all 1066 pages of the proposed legislation to insure its contents.
thanks for looking out for us,
deb
Hi Brian,
I am in Canada so I want to thank you also for looking out for the patient.
The Governments here and there both need to do more to look out for the patients with the safety and drugs.
They are very fast to approve the drugs and devices but do not take seriously the dire effects they have on patients (because, they say, there are not enough of us to make it worth their time)!
How many of us do there have to be to warrant a watchdog for the drugs, services and devices.
I really thank you for doing this.
JaneR
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