The Inspire health and wellness blog

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Five million

Brian
  • By Brian · Posted April 11, 2013
  • 261 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

A new Inspire report in collaboration with Stanford Medical School

Brian
  • By Brian · Posted March 13, 2013
  • 116 replies
  • As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

Exciting news

Brian
  • By Brian · Posted February 27, 2013
  • 0 replies
  • Fellow members, I'm writing today to share the exciting news that Genetic Alliance (www.geneticalliance.org) will be partnering with Inspire on this community, which will be called the Genetic Alliance ...

Count Us, Know Us, Join Us

Brian
  • By Brian · Posted October 24, 2012
  • 0 replies
  • Hello, We recently relaunched advancedbreastcancercomunity.org with Novartis Oncology support. The site includes the “Count Us, Know Us, Join Us” mosaic. Originally it didn't allow you to add yourself ...

Introducing 'Count Us, Know Us, Join Us'

Brian
  • By Brian · Posted September 6, 2012
  • 0 replies
  • Hello, You’ll notice that we’ve updated the look of this community. We hope you’ll agree this is a nice, fresh design. We’d also like to announce a new support program from Novartis Oncology aimed at ...

Narratives from the NICU

Brian
  • By Brian · Posted November 1, 2011
  • 0 replies
  • In recognition of Prematurity Awareness Month 2011, I am pleased to share with you a new free 32-page online report, Narratives from the NICU: Neonatal Intensive Care Units Through the Eyes of Parents ...

Patient-driven research

Brian
  • By Brian · Posted October 13, 2011
  • 0 replies
  • I'd like to share with you a new Inspire report, The SCAD Ladies Stand Up: Stories of Patient Empowerment, which chronicles patient-initiated research in our community. This amazing patient-driven effort ...

On TalkPsoriasis, supporting a new member is no heavy lifting

Brian
  • By Brian · Posted March 25, 2011
  • 0 replies
  • Inspire is proud to partner with NPF on TalkPsoriasis, which connects nearly one million individuals annually and provides information and support about psoriasis — a chronic, noncontagious disease of ...

The Inspire Rare Disease Day report

Brian
  • By Brian · Posted February 21, 2011
  • 18 replies
  • About a month ago, I asked Inspire members who have a rare disease or who are helping care for a loved one with a rare disease to share their stories for a special report. The stories you shared are wonderful ...

Share your diagnosis story for Rare Disease Day

Brian
  • By Brian · Posted January 3, 2011
  • 23 replies
  • Hello everyone, In recognition of Rare Disease Day 2011 on February 28, we are looking for Inspire members who have been diagnosed with a rare disease, or who are helping to care for a loved one with ...

Inspire featured in ABC News story about helping patients with rare disease

Brian
  • By Brian · Posted October 15, 2010
  • 44 replies
  • This story highlights how so many of us discover and support one another through Inspire: Social Networks Make Rare Diseases Not so Hard to Find I think you'll enjoy reading it. Brian ...

Good Morning America is looking for stories about cardiac screening

Brian
  • By Brian · Posted September 2, 2010
  • 2 replies
  • The ABC Medical Reporting Unit is looking for a high school student to interview for the television show Good Morning America. ABC has asked us to help find a high school student who was mistakenly told ...

A few more words about privacy

Brian
  • By Brian · Posted August 25, 2010
  • 75 replies
  • All of us at Inspire care a great deal about your privacy and work hard to ensure the information you trust us with is kept safe. We designed Inspire so that you have complete control over how your personal ...

Health communities described in the New York Times

Brian
  • By Brian · Posted March 25, 2010
  • 21 replies
  • There is a good article, and mention of Inspire, in the New York Times. We spoke with the Pew Internet and American Life Project about this research, and support the work they're doing to understand the ...

World Rare Disease Day

Brian
  • By Brian · Posted February 25, 2010
  • 26 replies
  • In recognition of Rare Disease Day 2010, Inspire and the National Organization for Rare Disorders conducted a survey of Inspire members with rare disorders. The results are enlightening, and I encourage ...

Inspire members featured

Brian
  • By Brian · Posted October 28, 2009
  • 33 replies
  • Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...

Agency for Healthcare Research and Quality

Brian
  • By Brian · Posted August 5, 2009
  • 3 replies
  • Inspire recently participated in the Agency for Healthcare Research and Quality (www.ahrq.gov) conference entitled 'Building Bridges: Consumer Needs and the Design of Health Information Technology' in ...

Inspire to Co-Sponsor BIO Healthcare Reform Meeting

Brian
  • By Brian · Posted June 15, 2009
  • 0 replies
  • Inspire is proud to join the movement to pass comprehensive healthcare reform legislation. On Wednesday, June 17, we will be co-sponsoring an 'emergency' meeting titled 'The Future of Advocacy and Improved ...

The link between excess weight and osteoarthritis

Brian
  • By Brian · Posted April 16, 2009
  • 2 replies
  • If you're a member of this community, you already know how connecting with others who know what you're going through can give you the support, encouragement, and inspiration you need to achieve your goals ...

Things you can do