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BobbyB's discussions
youtube surfin, videos on ALS
- By BobbyB · Posted December 22, 2008
- In ALS Advocacy · 1 reply
- youtube ---------------------------------------- ---------------------------------------- Lou Gehrig's Disease: The Military Connection and ALS http://www.youtube.com/watch?v=5gReBjAgT Lk ALS - Amyotrophic ...
Petition to make July 4th National ALS Day
- By BobbyB · Posted December 8, 2008
- In ALS Advocacy · 2 replies
- Petition to make July 4th National ALS Day http://www.petitiononline.com/122296/pet ition.html To: All Major and Minor League Baseball Franchises, US Congress, US House of Representatives On April 30th ...
Patient-led drug trials defy medical establishment
- By BobbyB · Posted November 27, 2008
- In ALS Advocacy · 0 replies
- Patient-led drug trials defy medical establishment Associated Press - November 26, 2008 11:24 PM ET CLAREMONT, Calif. (AP) - Dozens of patients suffering from the fatal neurological disorder known as ...
It's time to help veterans with Gulf War illness
- By BobbyB · Posted November 20, 2008
- In ALS Advocacy · 0 replies
- It's time to help veterans with Gulf War illness posted: November 20, 2008 What will the government do to make veterans with Gulf War syndrome whole? The question has new urgency in the aftermath of a ...
Letter to Editor this Veterans Day. 11/11/08
- By BobbyB · Posted October 29, 2008
- In ALS Advocacy · 1 reply
- Letter to Editor this Veterans Day. 11/11/08 Please send this letter to your local news papers. From the website of advocate4als.org Thank You VETERAN'S DAY - November 11 To the Editor When we honor our ...
Ken Patterson reaches Washington D.C.
- By BobbyB · Posted May 14, 2008
- In ALS Advocacy · 2 replies
- Ken Patterson reaches Washington D.C. Rolling Over ALS Ken Patterson Sr. has ALS. He is riding in a motorized wheelchair from Florida to Washington, D.C. This video is from YouTube. There is news clip ...
So, you're going to write your Congressman?
- By BobbyB · Posted March 18, 2008
- In ALS Advocacy · 2 replies
- Letters to Congress So, you're going to write your Congressman? Good idea. Make it a good letter. People who think members of Congress pay little or no attention to constituent mail, are plain wrong ...
WE NEED TO STEP UP TO THE PLATE AND WE NEED TO HIT BACK.
- By BobbyB · Posted March 18, 2008
- In ALS Advocacy · 1 reply
- we all have faces. but all the work that has gone into the als registry and then one man puts a stop to it. WE NEED TO STEP UP TO THE PLATE AND WE NEED TO HIT BACK. we are writing letters and sending ...
Welcome to the ALS Registry
- By BobbyB · Posted August 16, 2006
- In ALS Advocacy · 3 replies
- Welcome to the ALS Registry http://www.patientslikeme.com/registry There are 345 PALS in the registry from 33 countries. This is the registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ...