Lifeboat Perspective

I have Stiff Person Syndrome, SPS. I have been in other forums where the focus is SPS only, helpful to understand the mechanics of the syndrome. All difficult diagnoses have their own individual recipe of physical horrors.

For me, one advantage of Inspire is reading about the different diagnoses and the struggles involved. It helps keep an awareness on the real pain of others and not just a focus on 'my' illness. Suffering wears many guises.

While the physical diagnoses are different, I read where all struggle with life-altering issues that come from serious and rare illness...Disability, social misunderstanding, insurance haggles, knowledgeable healthcare, loss of self, grim futures, and the big "why?"

I think about the movie, "Titantic." In the icy black water, many drown, but a few survivors wait shivering in different lifeboats under a blanket of stars, daring to hope in the wake of death.

I think of us that way...huddled in our different diganostic boats in the same icy black water...hopefully waiting.

“We are all in the gutter, but some of us are looking at the stars.”