American Childhood Cancer Organization Support Community

The American Childhood Cancer Organization Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

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Hepatoblastoma stage 3

By Mholmes14 · New reply 12:40 am
Discussion in Raising a child with cancer · 21 replies
My 2 year old daughter was recently diagnosed with stage 3 hepatoblastoma. We just entered her 2nd cycle of chemo. I would love to talk to other parents who have been down this same road ...

Osteosarcoma

By MsScott · New reply May 14, 2012
Discussion in Newly diagnosed · 6 replies
My 7 year old daughter Myanna was diagnosed with Osteosarcoma March 9th. She had been complaining about her arm hurting for weeks and I thought well your just having growing pains. Her arm was swollen ...

Coming to an end

By mom2rka · New reply May 9, 2012
Discussion in Raising a child with cancer · 4 replies
My husband and I realized today that we need to start making arrangements for our daughter but we don't know where to begin. Any suggestions on where I might be able to find this type of information ...

Time flies...

By Rowan22 · New reply May 3, 2012
Journal · 3 replies
Has it really been six months since I last posted about Aiden? That i just insane. But so much has happened and we have been just busy living. Let's see... around Thsnksgiving Aiden got really sickly ...

Ashton Jaelyn

By Mholmes14 · Posted April 26, 2012
Journal · 0 replies
2 days after celebrating my 2 year old's birthday we found out devastating new. At her 2 year well visit the doctor discovered that her liver felt enlarged. We were rushed to Phoenix Children's hospital ...

Diabetes drug may treat multiple cancers

By RachelIdon · New reply April 18, 2012
Journal · 15 replies
http://www.1uponcancer.com/2012/04/05/di abetes-drug-may-treat-cancer ...

The Inspire Q&A: Inspire talks with Howard Luks, MD

By John2 · New reply April 15, 2012
Journal · 59 replies
Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

Chemo

By MsScott · New reply April 13, 2012
Journal · 2 replies
My daughter had chemo last week, but due to her having a fever they kept her until Wednesday. It is SO HARD watching her go through this. I wish it was me instead of her. She goes back Tuesday for Methotraxate ...

Hyperthermia to Boost Chemo and Rads

By RachelIdon · New reply April 6, 2012
Journal · 11 replies
Hi all, I keep stumbling into info on hyperthermia for cancer treatment so did a little research. Here's what I found if you're interested .... http://www.1uponcancer.com/2012/02/12/hy perthermia-to-boost-chemo-and-radiation ...

Proton Therapy for 5 yr old with brain tumor

By princessisabelle · New reply April 5, 2012
Discussion in Treatment · 11 replies
My daughter is now 5 and has been diagnosed with Anaplastic Astroblastoma, the tumor was removed and now doctors are wanting to treat with Chemo and avoid radiation due to her age. My husband and I really ...

My Hair is Gone

By Rx · Posted April 5, 2012
Journal · 0 replies
A year and a half ago I decided to grow my hair for Locks for Love. Well it was finally long enough to donate. Cut it all off 2 days ago and mailed my ponytail to Locks of Love! :-) March of Dimes coming ...

What do you think? Can a child make an informed treatment decision?

By ADnea · New reply April 5, 2012
Discussion in Raising a child with cancer · 4 replies
Hello Everyone. Today, I read an article that I thought would make an interesting discussion topic. It is about an 12-year-old boy who decided to terminate his cancer treatment. You can read the article ...

Family Update from the better side of Cancer

By JLH1 · New reply March 30, 2012
Journal · 2 replies
Hi Friends, It has been a long time since I have written anything for this site. It seems that as time passes our family’s cancer experience with my daughter Ashley drifts farther from my thoughts. It ...

Astroblastoma

By princessisabelle · New reply March 20, 2012
Discussion in Newly diagnosed · 4 replies
Six weeks ago my 4 year old daughter had surgery to remove a brain tumor. We have finally received the diagnosis of (Anaplastic) Astroblastoma. Since this is a rare brain tumor we are having trouble finding ...

Interactive Health: A New Grassroots Movement By Doctors

By hmargaret · New reply March 16, 2012
Journal · 1 reply
Check out this article from The Health Care Blog: http://bit.ly/AwlCQD "Interactive Health is transitioning clinical care from real-world, costly encounters to virtual, inexpensive, cloud-based care ...

Hepatoblastoma

By Ortiz3 · New reply March 15, 2012
Discussion in Newly diagnosed · 13 replies
My nephew was just diagnosed with this cancer its really rare in his age group. He's already in stage 4, we're scared. Not a day has gone by that we haven't cried, not for ourselves but what he's been ...

Attitude

By Rx · New reply March 9, 2012
Journal · 8 replies
"The only disability in life is a bad attitude" - Scott Hamilton - Cancer Survivor ...

Brayden's Neuroblastoma Journal

By teambrayden · New reply March 8, 2012
Journal · 2 replies
We started a caring bridge journal before Brayden was even diagnosed with Neuroblastoma. We would like to share his story and meet other families that have gone through what we are going through. Here ...

Medulloblastoma

By flkrkr · Posted March 4, 2012
Discussion in Treatment · 0 replies
Twenty six years ago I was diagnosed with a Medulloblastoma (malignant) brain tumor. Surgery and radiation therapy to both my brain and spine were successful and I have remained cancer and tumor free ...

Patients Organisation and Support Group for Carney Complex

By motorgirl85 · Posted March 4, 2012
Journal · 0 replies
motorgirl85 * By motorgirl85 · Today at 12:50 pm · 0 replies * In Finding emotional support * Recommend Unrecommend Processing ... Follow replies Stop following Processing ... Problem More options More ...

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Links and Resources from ACCO

About Us
About the American Childhood Cancer Organization's purpose and mission.

Free Resources
We offer a variety of FREE books and materials for kids and families.

Treatment Information
Information about childhood cancer treatment centers, clinical trials, and more.

Donate
Your gift will allow us to continue developing new programs and to continue creating and distributing free materials for children and families.

Educate Your Community
This presentation, entitled "Unsung Heroes" will help you educate yourself and your community about the trials and tribulations faced by children and families. As a parent, caregiver, patient, or survivor, you'll have a powerful tool to supplement your already-powerful story.

Gold Ribbon Awareness
ACCO's new awareness program. Host a gold-themed event to raise funds and awareness!

PJammin for Kids with Cancer
Create supportive schools and businesses in your community by hosting pajama days for kids with cancer!

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ACCO on Twitter

accorg: Cozy and I are getting ready to meet some pediatric oncology social workers at the APOSW Conference in Portland, OR http://t.co/RkK6PoCd

accorg: Our new book about #DIPG - a type of #ChildhoodCancer - is off to the presses!! Stay tuned for more information!

accorg: RT @PedOncDoc: Every mother who has had to walk the journey of #PediatricCancer is an #ExtraordinaryMom so #HappyMothersDay

accorg: RT @StopCancer: Young cancer patients' 'Stronger' video a big hit http://t.co/aMHCwBfE

accorg: Moms, you are the strength and the inspiration. Today is for you!

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About this community

The American Childhood Cancer Organization Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the American Childhood Cancer Organization, an Inspire trusted partner.